Since 2016, hundreds of thousands of people throughout the U.S. have joined SPARK. Many have shared their autism and research journeys with us. These family stories are about everyday life, triumphs, challenges, and why finding answers through SPARK’s autism research is important.
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Kaylee Lurvey may go years without saying a word, and then speak a complete sentence. Her family hopes researchers will discover ways to unlock speech and other skills in people like Kaylee.
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Leigh Merryday Porch, a mother of a son with autism, wants to help researchers find out why autism affects people so differently. That’s one of the reasons she joined SPARK.
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Dylan Robey loves insects, all of them, even the dreaded cockroach. Like many people with autism, Dylan has what researchers call a special interest, in his case, in bugs. Others might call it a passion for the unappreciated.
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Jennifer Kelly took her son to a specialist because he was having behavior problems at school. But the doctor’s initial diagnosis didn’t seem right.
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The Sandos have three reasons for their commitment to autism research: Lizzie, Blake, and Teddy.
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Elaine Hamilton spent years helping families of children with disabilities. So when she was asked to publicize SPARK, she decided to go a step further.
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After enrolling in SPARK, the Meiles learned that their son has a change in the POGZ gene. The diagnosis helps explain a mysterious health issue.
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Sandra Sermone refused to wait. She had seen her son Tony through heart surgery, a feeding tube, brain scans, countless blood tests, and medical appointments. This little boy who struggled to eat, talk, and play was getting worse. Sermone had three things: a telephone, a computer, and an inability to be discouraged. She would find an answer for what was happening to her child.
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Researchers have taken notice of parental stress in families of children with autism. More than a few studies report that parents of children with autism experience more stress than parents of typical-developing children and parents of children with Down Syndrome.
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Nataly Cuzcu’s twin daughters were 11 months old when she first noticed that their development seemed to be moving backward.
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